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Language plays a crucial role in shaping how society views people with epilepsy, and the words we choose can either foster understanding or perpetuate harmful stereotypes
Epilepsy is diagnosed after a person experience at least two unprovoked seizures that are at least 24 hours apart
Epilepsy is one of the most misunderstood medical conditions, often accompanied by social stigma that affects not only the person’s health but also their mental well-being. Language plays a crucial role in shaping how society views people with epilepsy, and the words we choose can either foster understanding or perpetuate harmful stereotypes. Dr. Anil Venkitachalam, Consultant Neurologist, K J Somaiya Hospital and Research Centre, sheds light on the mental health impact of stigmatization and offers insights into how we can promote a culture of inclusion for individuals with epilepsy.
The Mental Health Impact of Stigmatization
Stigma and discrimination can have devastating effects on people living with epilepsy. According to Dr. Venkitachalam, the language used to describe epilepsy can significantly influence a person’s mental health. “Language shapes how we view people with epilepsy. The words we choose can help or harm them. Using the wrong words can cause stigma, shame, and social isolation. It can also lead to mental health problems like anxiety and depression,” he explains.
The negative language surrounding epilepsy can lead to increased anxiety, lower self-esteem, and even depression. People with epilepsy may feel isolated, misunderstood, and stigmatized, which can deeply affect their sense of self-worth and confidence. In some cases, this prolonged emotional strain can result in more severe mental health issues, including suicidal thoughts. As Dr. Venkitachalam notes, “Stigma against people with epilepsy can greatly harm their mental health. It can cause more anxiety and depression. This stigma can also lower their self-esteem, self-confidence, and sense of self-worth.”
Therefore, understanding the mental health implications of stigmatization is essential in creating a supportive environment for those affected by epilepsy. Language, as Dr. Venkitachalam emphasizes, is a powerful tool that can either perpetuate or challenge these harmful perceptions.
Promoting Inclusive Language
Inclusive language is a simple yet powerful way to support individuals with epilepsy and help reduce stigma. Dr. Venkitachalam stresses the importance of using person-first language, which focuses on the individual rather than the condition. “It is very important to use inclusive language when talking about people with epilepsy. The main thing is to use person-first language. For example, instead of saying ‘epileptic,’ say ‘a person with epilepsy,’” he advises.
Furthermore, terms like “seizure victim” or “suffering from epilepsy” should be avoided, as they imply helplessness and victimhood. These phrases can cause unnecessary mental trauma and reinforce negative stereotypes. Dr. Venkitachalam suggests that instead of focusing on the illness, we should emphasize the person’s strengths, abilities, and achievements. “Focus on the person’s strengths, abilities, and accomplishments rather than using negative terms,” he recommends.
Education also plays a pivotal role in creating a supportive environment. By sharing accurate, clear information about epilepsy, we can challenge misconceptions and encourage others to interact with empathy and understanding. “It’s also important to educate others about epilepsy. Share accurate information and promote understanding so people can be more aware and handle situations tactfully when dealing with individuals with epilepsy,” Dr. Venkitachalam advises.
Creating a Culture of Acceptance
The key to fostering an environment where people with epilepsy feel accepted and valued lies in creating a culture of inclusion. Dr. Venkitachalam believes that language is a fundamental part of this cultural shift. “Using kind words and creating an accepting culture can reduce stigma. This improves mental health and well-being for those with epilepsy.”
In addition to using inclusive language, he emphasizes the importance of teaching others about epilepsy. When more people understand the condition, they are more likely to treat individuals with empathy and respect. “It is important to teach everyone about epilepsy. Sharing correct information helps people understand it better. Using kind words and creating an accepting culture can reduce stigma,” he says.
This cultural transformation requires a collective effort, from healthcare providers to educators and the general public, to ensure that individuals with epilepsy are not only seen as patients but as people with potential, strength, and the same rights as anyone else.
The stigma surrounding epilepsy is often rooted in misconceptions and harmful language. However, as Dr. Anil Venkitachalam explains, promoting the use of inclusive language and fostering a culture of acceptance can significantly reduce the mental health burden on individuals with epilepsy. By changing the way we talk about epilepsy, we can create a more supportive, understanding, and inclusive society. The language we use holds the power to either perpetuate stigma or pave the way for a more empathetic and compassionate world for those living with epilepsy.
